Wednesday, 24 May 2017

Not all disabilities are visible

It's been a while since I've posted on here and that's a good thing. I've been doing really well. I started a job a few months ago and a couple weeks ago that's been made full time until the end of the year. I wasn't sure how I would go with my health problems, but they've been going great. My bipolar has been under control and I haven't been in much pain. (Apart from a few trips to the physio because of shoulder/neck pain from something unrelated.)

But now that it's autumn and the weather is changing, my joints are starting to hurt quite a bit again. My back was getting so bad today that I had to leave a bit early from work so that I could get home and lay down.

I went to my doctor this morning to renew scripts and had a conversation about my rheumatologist. We haven't gotten anywhere with regards to a diagnosis and she hasn't ordered any more tests, so I asked for a referral to another rheumatologist to get a second opinion. My GP said that he thinks I should be on biologics, but I need a diagnosis from a rheumatologist before that can happen. Hopefully we'll actually get somewhere with a new rheumatologist. The wait lists are generally really long, especially for new patients. But at least I have my other drugs in the meantime.

The picture is something that they have in London that is awesome for those with chronic disabilities who take public transport. I don't look like I'd have a disability, but sometimes my pain makes it too hard to stand. I wish we had these cards because I'd hate to need to ask someone to offer me their seat. Luckily there were plenty of seats for me on the bus today.

You can read more about the badges/cards here.


(Picture: TFL)